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Jennifer Trent's avatar

The time I was furious with God was when I was 13 years old and my baby sister had died. She was 1 day short of 5 weeks old. She was born with a rare liver disorder. The statistics of this was 1 in 1,000,000. What made it worse was that the disorder was supposed to be genetic. When my parents, their siblings and parents were tested the gene wasn't found in anyone. So Tracy was a genetic mutation. Those statics are 1 in 10,000,000. So as you can imagine we were devastated! We watched my Baby Sister deteriorating before our eyes. She was in Riley Children's Hospital in Indianapolis IN. The nurses, Doctors and Specialists that attended to my Sister were absolutely phenomenal! They did absolutely everything they could to help her. When they couldn't do anything else we waited until the day she passed away. We all knew that she went to Heaven because she didn't live long enough to sin. Of course our first reaction was to be FURIOUS with God for allowing all those injustices happen to a new born baby. Mom and Dad allowed biopsies to be done of her liver. There were 5 and they were sent all over the world with one staying at Riley. Fast forward to 3 years later. I was singing in a concert at my High School and Mom and Dad had a new healthy baby girl. Staci Jo was being fussy during the concert and Mom was shushing her. The family behind her told her that she wasn't bothering them. They enjoyed hearing her crying. They had a Grandson that was born with the same disorder that my baby sister Tracy was born with. The doctors were keeping him alive from studying a little girl (Tracy) liver sample. Unfortunately he had no quality of life. He wasn't able to cry. Fast forward to several years later. My daughter Danielle was rapidly loosing weight due to an acid reflux issue. At 6 months old her body was in total ketosis. The Specialist instantly looked into her liver. Needless to say it freaked me out. The Liver Specialist at Riley explained to me that my baby sister's (Tracy) disease was a manageable disease now thanks to the research that was done on Tracy's liver. We received 2 confirmations that Tracy Dawn Couchman's life (however short) wasn't in vain. God had a purpose for her even though we didn't see it at the time of her short existence and passing. Let's just say my perspective has changed on Tracy. At first we're praying continuously for her healing. Then the prayers turned to WHY!?!? After that thankful. God chose my family to endure watching Tracy be poked, tested and deteriorating. He felt we were strong enough to handle it. He chose my Sister to be a revolutionary in the medical field. And He gave us confirmation that her life was necessary to help others in the future. God laid it on my parents hearts to allow biopsies of her liver done. Even though they had just watch her be born, be sick, get tested and die all in a matter of weeks. I believe that this made us stronger.

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Dawni Seymore's avatar

I’m walking through this very thing right now. I prayed for my daughter and she died. She was 24..it was a year on March 24,2025 and I am angry..but, I’m hanging on with bloody fingertips

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